Posted by & filed under Tap Room.

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Date/Time
Date(s) - 13/05/2017
5:00 pm - 8:00 pm

Location
NOLA Brewing Tap Room

Categories


Come enjoy a BREW FOR MOLLY MOO to help fundraise and support Molly Zwiener’s journey with Koolen de-Vries Syndrome!!

NOLA Brewing has kindly donated a room for this exciting event. Suggested donations are $25/person and include open tap bar, food and donation.

**Suggested donation can be made by emailing mollyzstrong@gmail.com with how many guests you would like to attend. **

Suggested donations accepted at the door via cash, check or venmo.

Molly Strong t-shirts will also be available for pre-order purchase through email listed above or can be purchased at the event.

Please invite anyone and everyone that has prayed and cheered Molly on in her journey so far! We would love to celebrate a fun night with all of you!

Molly was diagnosed with Koolen de-Vries Syndrome, after a series of medical issues led doctors to recommend genetic testing. KDVS is a very rare genetic disorder involving a micro-deletion of the 17th chromosome. There are an estimated 500 diagnosed cases in the world and only approx. 150 in the US. This deletion can cause low tone, developmental delays, possible learning difficulties and various health conditions including heart defects, kidney issues, epilepsy, feeding & breathing issues, hearing loss, among others. To learn more, visit https://supportingkdvs.org/
Molly has had an eventful 2 years with 6 surgeries and procedures requiring anesthesia, including a major airway surgery when she was 6 months. She does weekly physical therapy, occupational therapy and speech therapies and rocks a pink heairing aid! She has had many hospital visits and too many tests to count, but remains Molly Strong through them all!

** A portion of donations and tshirt sales will go to the KDVS Patient Advocate Summit, which Molly and family will be attending this summer in Memphis, and continual medical and therapy expenses for Molly **